Meniere’s Podcast
I went to iTunes the other day and searched for Meniere’s podcasts. I found three podcasts listed. All three were of a medical nature (Johns Hopkins, etc) and only had one or two episodes about Meniere’s and/or vestibular issues. In my feeble mind, this is unacceptable. I was looking for something that I could add to my iPod and crank up the sound and listen to to get tips and ideas for people who have Meniere’s from people who have Meniere’s. There was nothing. I want to change this. It is my desire to start a podcast that covers this as well as flavors it with some technical information from the professionals (i.e.: Neuro-otologists, ENTs, etc).
Please leave a comment with your thoughts and ideas regarding this podcast formation. Then send the link to all your friends and family to allow them to provide their input. Even those who don’t have Meniere’s, but know someone with Meniere’s can have much to add to to help us and we in turn can help them.
Also, eventually, as I am still in the process of writing my book about Meniere’s, I would like to incorporate information gathered during the podcasts into the book. It is still my greatest desire to do all I can to educate the world regarding Meniere’s and when the book is published ALL my royalties will go for Meniere’s research. There is not a lot of education, publicity nor research for Meniere’s. In fact, so many of us never heard the term Meniere’s Disease until we were in the process of being diagnosed. I want that term to become as much a household term as Cancer and Diabetes. I can’t do it without your help.
This is a great idea. I wish you the best with this project; I can’t do much but I can spread the idea through facebook. You have all my support *hugs*
Hi DL,
I just came across this post while doing some Google searches for Meniere’s info.
I was diagnosed with Meniere’s back in 2007. While the disease has had a very big impact on my life, the impact has not been completely negative. After months of suffering, I decided to radically change my diet and lifestyle. These changes have paid off in many ways for me. I describe the changes and the benefits I’ve achieved on my blog at http://frankjreda.com/blog.
I agree with you that there is far too little information from professional healthcare providers regarding Meniere’s Disease. One of the missions of my blog is to help inform people on the disease, it’s effects and provide links to information that could help others.
I hadn’t considered a podcast. I think that’s a great idea. Like you, I’ve considered writing a book about my experiences, but to be honest, I’m just an ordinary guy with no medical experience. I doubt that people would buy my book, because it would lack medical credibility.
In any case, please feel free to take a look at my blog and leave some comments. I’ve just read a few of your posts and I think I’ll be following your feed. We Meniere’s sufferers need to stick together.
All the best,
Frank