Meniere's– "As The World Spins"

One thing well known in the world of Meniere’s is how long it takes to figure things out. When I first presented in November 2004, I thought it was an inner ear infection. My second bout was February 2005 and I got the doctors involved. From there it took seven months to reach a diagnosis. Following the diagnosis it took several months longer to determine my triggers; stress and being a girl. Just this past June I added weather as a third trigger.

Diagnosis and triggers are only a part of the equation. I believe the longest process is determining treatment. While trying to determine what will help relieve your symptoms (if anything will) you work on treating the symptoms and the triggers. Since each person is different regarding their symptoms and triggers, so it goes that long-term relief is also different. Meaning, what works for one may not work for the next.

It took about four years from the time I first presented for me to find the one thing that helped me to return to my life nearly as if it were before Meniere’s found me. After many attempts at treatments, October 2008, grommets were implanted in my eardrums and I felt better than I have in longer than I can remember. I am moving in the right direction now and I hope that all those with Meniere’s can do the same.

I chose this name for my blog (well, it was one of my brainstorms that Colette really liked and we went with it) because anyone who has or knows someone who has Meniere’s Disease knows intimately well that your world is like a spinning top.

I wrote a poem and an essay a couple years ago about my spinning world. When attending amusement parks, carnivals and fairs I always wanted to get on the rides that would spin. I loved the carousel and the TN Twister. If it spun I would ride it. I would be caught quite often, in spare moments, spinning around in my office chair at work. My favorite holiday game is Dreidels. I always liked to watch them spin around. Then one fateful day in the autumn of 2004 I started to spin.

Seeing the world spinning around when you are not on an amusement park ride nor intoxicated can be quite scary. Making things worse is the hearing loss and constant tinnitus that all but drives you mad. You sit and wonder what you have done wrong or could have done differently to prevent this monster from invading your life. Then there are the moments that you contemplate doing as van Gogh and cutting off the offensive anatomy realizing that you will no longer have ears to hold up your glasses and you let the feeling pass.

What are your thoughts and feelings? How do you cope? What is it that keeps you from going utterly and completely mad?