chronic illness

Ostriches In The Sand

Having an invisible illness gives a person a different view of the world.  I struggle when I go anywhere and have no one to help me except the very small handful of compassionate people who may see me and come over to help if it isn’t out of their way.  This morning I had to run a few errands.  I went to the post office to check my mailbox and there were no kind folks around to hold the door as there usually are. This is not really a big issue.  I returned to my car and drove down to the supermarket.

The supermarket can be a bit of a challenge as it is so big and I must make my way around, staggering with my cane and a buggy.  Occasionally I am met with smiles and nods from the front end employees and then by other employees as I make my way around.  Today, it was as if I was invisible.  Not just invisible to employees, but to other customers as well.  I couldn’t help but think as I was struggling in the dairy isle to get an item lower than what I could safely reach.  I saw via peripheral vision a man walk past me as I struggled to keep my balance and remain standing.  Clearly, he had to notice my difficulties, but kept on walking. 

There were others as well that seemed to do this.  It was as if they made eye contact they would be obliged to assist me and they were far too busy to show compassion or kindness to a fellow human being.  I just couldn’t help but think about the myth of the ostrich burying his head in the sand.  Pliny the Elder once wrote, “imagine, when they have thrust their head and neck into a bush, that the whole of their body is concealed.”  This is to believe to be the source of the myth regarding the ostrich.  Humans are a lot like this though.   Not that by hiding their heads they believe their entire body is hidden, but if they cover their eyes, then the ugliness and ailments of their fellow human beings does not exist.

Too often, we cover our eyes or put on blinders to the outside world hoping that what is wrong with it will just go away and cease to exist.  We hope that the poor soul struggling to keep herself on her feet to finish her shopping will just disappear because we are too busy and too important to stop for just 30 seconds to assist someone else.  Or by putting a blindfold on the bruises and cuts on the child next door will fade and never return because we just can’t take a minute of our own time to at least look that child in the eye and show them that there is something other than the pain they feel.  Our own lives and families are far more important than to get involved with the likes of that.

Sometimes just one moment is all it takes to show another human being the kindness and compassion we all deserve.  After I left the supermarket and was driving home I continued to let this subject twirl in my mind.  I knew I was already worn out and didn’t feel like preparing food upon arriving home.  I stopped by my local Hardee’s (yes, the same one where I called the employees a bunch of plebeians) to pick up a burger, fries and a lemonade.  It was 1040 and I knew they were already serving lunch.  My order was taken at the drive-thru and I pulled up.  There were two vehicles in front of me.  The car ahead of me stopped briefly at the window and then pulled up to a space apparently to await a staff member bringing his food to him.

Being hearing impaired I watch the window till someone arrives.  I saw two employees pointing at a monitor and eventually the young girl I saw there came to the window and asked if I was the one who ordered the two sausage biscuits.  I said no and advised I ordered a burger.  She apologized and left the window.  Upon returning she opened the window and I could hear a female voice verbally assaulting her.  She said it would be a few minutes and asked if I could pull up or she could just return my money.  I asked how long and she went to check.  She returned to tell me one minute and thirty seconds would be my wait.  At that moment a very rude woman pushed into the window demanding to know what the problem was.  The young girl told her I was waiting for my burger and trying to decide if I wanted my money back due to the wait.  The other woman snapped at the girl and said my order was ready.

Due to the other woman’s behavior I was ready to just ask for my money back.  When the girl returned with my food I asked who the woman was and was advised she was the General Manager of the store and the girl said she just got into trouble due to my order.  I was not happy at this point and asked if that woman’s supervisor was around, however seeing she was the General Manager, she was the top of the food chain here.  I told the girl that she was the only reason I was not asking for my money back.  If it had just been for the other person, I would ask for my money in a heartbeat and leave.  I further told this girl that she remained calm and reasonable even though it was apparent the manager was losing her self-control.

Normally I would praise someone like this in front of them to their supervisor.  This time, I knew that was not an option.  This manager seemed the type who would retaliate against the girl.   As I praised her, I saw her demeanor change.  She felt much better than when I first pulled up.

It only takes thirty seconds to make someone’s day.  It takes just a short amount of time to help a person who needs it.  Human compassion and kindness should be demonstrated, not only to those we know and feel have earned it, it is something that should be part of our daily lives toward strangers who may never cross our paths again.  Burying your head in the sand or putting blinders on does not make life’s ugly struggles go away.  Taking a few meager moments of your valuable time, however, can make it go away, or at the very least make things easier.

My New Purpose Needs YOU!!!!

On one of my last visits with my psychologist I told him that I had a purpose.  His ears perked up and he sat up straighter in his chair and got a grin on his face before asking me to elaborate.  While I was away last week I woke up with something going through my head that I have been wanting to write for a very long time.  It was a speech.  A speech that one day I would love to present to a Senate committee to get them to increase medical research for Meniere’s Disease.   I want this term to be as much a household term as cancer, diabetes and AIDS.

I cannot do this without your help.

In the next few weeks I will be adding on things to my website http://www.dlbach.com/, to help with this endeavor.  I will also be looking into setting up a special link to begin to raise more money for research for Meniere’s Disease.

In 2006 when I was still unilateral I had surgery which failed.  Following that my doctors, knowing I am a writer, encouraged me to write a book about Meniere’s Disease.  The majority of the books on this topic are just accounts of other people’s battle with the dragon.  My doctors knew I would be able to write a book filled with information to help people.  It has always been my desire to complete this book and give all my royalties to research.

I know you are asking where you come in with helping me.  Besides buying the book when it comes out and possibly donating to the fundraiser, I need your presence.  I need you to encourage me and help keep me on track.  Also re-post and forward my blog posts, etc.  Some of you also battle this blasted beast and know how difficult it is for me to undertake all of this.  If you have any talents or skills that you believe could also be of help, please send me an e-mail, PM, text, Skype, etc.

I cannot do this alone.  I really, really need each and every one of you to help me.  I am begging, because I really don’t want to go back to where I was last month.  This is where I am and where I am heading.  Keep me accountable.

Thank you from the depth of my very being.

Debbie

To Trust And Trust Not

What is trust?  Why do people trust?  Is trust a commodity to be bought and sold?  Or, perhaps, trust is a liability.  Where do I begin to answer my questions and try to figure out why one five letter word stifles me faster than any other, save love alone.

Random House begins their definition as such; “Reliance on the integrity, ability, etc. of a person or thing.”  But, doesn’t reliance mean trust?  OY!  The English language is confusing.  Maybe the part I have trouble with in this definition is “of a person…”  Roget didn’t even attempt to tackle the word trust.  They went from ‘truss’ straight to ‘trustee’.  Smart people they have working for them.

Trust is so overrated.  People use the word without really understanding it, like ‘love’.  They say “just trust me” or “you have to trust me”.  Why?  Every time I have put blind trust into another person, I alone have been hurt.  One should be able to trust the folks who gave them life.  Mine abused me physically and emotionally; and they allowed another parental figure to physically, emotionally and sexually abuse me.  Why trust?

I trusted my grandparents who had me most of my childhood.  They protected me until they wanted to make it permanent.  When they were denied this by my mother, they too gave me away.  They gave me back to the very person who wanted nothing more than to hurt me.  Why trust?

I trusted a man.  I gave him my heart and two years.  However, after a year and a half engagement, he decided to marry someone he knew for only two weeks, pretty much leaving me at the alter by sending me a letter one week and three days prior to our wedding.  Why trust?

I have trusted doctors who wrongly diagnose me and put me on medication that I do not need and which causes other more severe problems.  Doctors think they have all the answers and look at me as a troublemaker of sorts because I know more about me than they do.  Just be cause you have a degree is not a reason for me to trust you.

I used to trust myself.  But now Meniere’s is in play.  I never know if I am going to have a bout of vertigo or perhaps a drop attack.  I stagger along my way running into walls and furniture.  I can’t trust me or my body to do what I want them to do.   How can I trust me when I am laying sprawled out on the floor in pain from an illness that I cannot control nor vanquish.

Long ago, I would trust those who were, or at least seemed, different from my parents.  Until they proved I couldn’t trust them.  Now I trust no one.  I try to, but it just never comes.  I am finding more and more that there is a lot to be said for cynicism.  Maybe there is a future in it.  Or perhaps just a nice side venture till I can at least trust me once again.

So, why trust?  I still have not found any truly viable reason to trust flesh and bones.  When I have to rely on others, I suffer and always feel that it is not from goodness that they help me, it is for good old fashioned currency or some other form of repayment.

WHY TRUST?

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